CHD (Congenital Heart Defect) Awareness. Our family’s story…

CHD’s (Congenital Heart Defects) affect 1 out of every 100 babies born.

They have nothing to do with race, religion, health (for the most part, though it can be genetic), etc.

They are not selective and can happen to rich or poor people.

Newborns in many states are NOT screened for CHD’s as a part of regular Newborn Screening Tests before they are sent home.

There is a simple, quick, and painless test for newborns that parents can ask for that will rule out heart defects, lung issues, and many other issues that if not caught and treated can be deadly. It is called a Pulse Ox Test.

Women who give birth in hospitals have a Pulse Ox Meter attached to them the entire time they are in labor. It is that tiny red light that is attached to your finger and it measures the oxygen level in your blood. If your number drops, it means something is wrong.

This test in MANY states is NOT done on newborns. This is slowly changing state to state as parents and advocates work with Senators to introduce bills to make it a mandatory part of Newborn Screenings.

I am a CHD Parent. My son is a CHD Baby, a Heart Warrior, and here is our story.

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Christmas is in the air… At least at my house.

I broke all the rules today. My kids are home from school. Neither had class today, and by 8AM Mommy was a crazy person, so… I did something out of the box.

I put Christmas music on the Bose and turned the tv off.

My daughter, who is right at 5, asked me what I was doing since it wasn’t even Halloween yet.  I responded with, it’s time for Christmas Cheer! We are going to write letters to Santa, clean out our old toys and clothes to donate, and if y’all (meaning both of my children. Louisiana/Southern slang) are good, we’ll make some Christmas cookies.

As you can imagine, she was quite confused. But she went with it (she’s also not feeling well, so maybe that helped). Continue reading

25 Days of Christmas, 25 Acts of Random Kindness Challenge

Things have been insane around my house the past few days. But I had some time this morning after having 2 cups of coffee, getting my daughter off to school, and playing with my son.

I was browsing a few blogs and found a great idea from last year that I will be incorporating into our Christmas traditions this year. My children are 3 and 4 11/12ths  (she’ll be 5 in a month), but I want to teach them that Christmas is not about presents and it’s a time of goodwill and helping others. This year, we’re going to be “RACKing” people. (Random Acts of Christmas Kindness)

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